I know I intended for the blog to be entirely paper related but I couldn’t help myself. This past Saturday, myself and five friends all walked together to raise money for the Lupus Foundation of America at the Walk to End Lupus Now in Boston, MA.
My best friend 26 years was diagnosed with Lupus at the age of 13. By 14 she was on chemotherapy and I am so happy to report that now, at 26, she is nearly off of all her medications that keep her Lupus under control – which means she is extremely close to remission. Interestingly enough, even though the disease is not proven to be hereditary, her cousin was also diagnosed with it at 16 and has since gone through a kidney transplant. Her transplant unfortunately was rejected by her body and she will likely be on dialysis for the rest of her life. As you can imagine, both of these ladies have gone through extreme amounts of pain and anxiety. There is still so much unknown about this disease which means fighting it is a constant uphill battle.
If you’re not familiar with the disease, Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, organs, joints, etc). It has obviously had a huge impact in my life as two people I love dearly have been diagnosed with it, but research estimates that at least 1.5 million Americans have it. You can learn so much more than I could ever relay to you here at Lupus.org
Now — to tie this all into my craft-happy blog, you may or may not have noticed the snazzy shirts our team wore – I created those using my Silhouette Cameo, and I couldn’t be more happy with the end result. I came up with logo design and created it in Adobe Illustrator, I imported the design into the Silhouette Design Studio and Viola – six heat transfers later we had team shirts. Of course a glass (or three) of wine also helps the process and made for a much more enjoyable crafting night.
I’m so happy to report that our team raised over $750!! And between us and the rest of the Boston walkers we raised over $115,000 for research. I do hope you’ll take a moment to learn more about Lupus and all those effected by it and if you know someone or you yourself are effected by Lupus feel free to share in the comments section! Hopefully one day we can learn enough about this disease to find a cure so that all effected can say, ya lupus shmoopus!